Eastover Gardens Alzheimer Facility

Books about Alzheimer’s

Brackey, Jolene. Creating Moments of Joy for the Person with Alzheimer’s or Dementia. Purdue University Press, 2008.

Jolene Brackey has shared her practical solutions and insights in this book. These were gleaned from her initial experience in an Alzheimer’s special care unit as an activity director and from her many interactions with those who have the disease, family members, and professional caregivers in conferences, workshops, and other training venues. Her vision is for those of us who interact with a person who has Alzheimer’s disease to focus not on making a whole day a wonderful experience but on creating moments that bring some measure of joy for our loved ones or those in our care, perhaps that trigger a memory. Although they won’t remember what you did or said for long, if at all, the feeling you left with them has a more lasting effect. The web site
Enhanced Moments (http://www.enhancedmoments.com) provides more information about Ms. Brackey’s approach.

Castleman, Michael, Gallagher-Thompson, Ph.D., and Naythons, Matthew, M.D. There’s Still a Person in There. The Complete Guide to Treating and Coping with Alzheimer’s. A Perigee Book, Published by The Berkley Publishing Group, a division of Penguin Putnam, Inc., New York, 1999.

Michael Castleman is a health journalist and Dolores Gallagher-Thompson is a psychologist specializing in caregiving. Matthew Naythons, for the past thirty years has been a physician, a combat photographer, a book publisher and an Internet entrepreneur. This team has gathered research on the causes, diagnosis, current and potential treatments for Alzheimer’s and communicated their findings in this book.

While Nancy Mace and Peter Rabin’s The 36-Hour day (The Johns Hopkins University Press: Baltimore, 2006) presents material on diagnosis, behavioural changes, medications and sources of assistance in greater detail, There’s Still a Person in There is nevertheless still a helpful resource because of its emphasis on the importance of families caring for themselves as well so as to avoid some of the extreme emotional and physical consequences of unrelieved caregiving.

Davis, Robert.My Journey into Alzheimer’s Disease. Tyndale House Publishers Inc., 1989.

This older book describes the descent into illness of one man of faith. A review by an anonymous professional in the field of aging had this to say.

This book is unparalleled in its powerful insight into the mind of a person descending into the darkness of dementia. A wonderful tool to use if someone you love is facing the same journey. As you begin understanding the reasons for the bizarre behaviors your loved one may be exhibiting, your frustration turns into compassion and patience. This book may very well ignite a renewed desire to creatively incorporate new tools and methods of managing difficult behaviors and become the impetus to positively interact with the sufferer of this debilitating disease. I read this book when it was first written many years ago at the start of my career in the field of aging. I still refer to it today more than any other book as I help others deal with this confusing and heartbreaking issue.(Posted January 4, 2002, 1:26 PM EST on Barnes and Noble website)

Gruetzner, Howard.Alzheimer7rsquo;s, A Caregiver’s Guide and Sourcebook, Third Edition. John Wiley & Sons, Inc: New York, 2001.

Details presented are intended to help families, friends, and professional caregivers. Content includes:

  • The symptoms and traits of Alzheimer’s at each progressive stage and how to respond to behaviour problems.
  • Treatments and support services available
  • How to manage caregiver stress and chronic depression
  • The latest therapies and medical research

Kuhn, Daniel, MSW.Alzheimer’s Early Stages, First Step for Family, Friends and Caregivers. House, Inc. , Almeda, CA, 2003.

This book is an Alzheimer’s classic. It offers information on how Alzheimer’s begins, how to recognize early symptoms, what should be done immediately, what has to be planned for, and also information on how caregivers can take care of themselves.

Larkin, Marilynn.When Someone You Love Has Alzheimer’s.. Dell Caregiving Guides, Dell Publishing, New York, 1994.

This Dell Caregiving Guide offers straightforward advice that includes medical facts and helpful tips from caregivers. It answers some of the most commonly asked questions about Alzheimer’s disease and presents strategies for coping with memory loss, communication, mood, and behavior problems, nutrition, and other issues.

Mace, Nancy L., M.A. and Rabins, Peter V., M. D.,M.P.H.The 36-Hour Day 4th Edition: A Family Guide to Caring for People with Alzheimer’s Disease, Other Dementias, and Memory Loss in Later Life.. The Johns Hopkins University Press: Baltimore, 2006.

This book provides invaluable advice to families caring for people with Alzheimer’s disease and to other caregivers. It also includes new information on diagnostic evaluations, research, medications, the biological causes and effects of dementia, legal and financial information, and information about living arrangements.

Pearce, Nancy. Inside Alzheimer’s: How to Hear and Honor Connections with a Person who has Dementia. Forrason Press, 2007.

This book was featured in Library Journal’s “Best Consumer Health Books of 2007.” It emphasizes the importance of continued efforts to connect with those suffering from Alzheimer’s disease. Thos who have dementia need to be seen and appreciated as human beings. While it can be difficult to create moments of connection, it is vital to basic care. Every person needs to feel the satisfaction of being in vital relationship with other human beings. Case studies and exercises are provided.

Shenk, David. The Forgetting, Alzheimer’s: Portrait of an Epidemic (Doubleday, 2001) won First Prize in the British Medical Association’s Popular Medical Book Awards, and was welcomed by John Bayley as “the definitive work on Alzheimer’s.”

In January, 2004, PBS broadcast “The Forgetting,” an Emmy Award-winning documentary inspired by the book. (http://www.pbs.org/theforgetting/watch/index.html)

Dr. Shenk speaks frequently on issues of health and aging and has advised the President’s Council on Bioethics on dementia-related issues. He emphasizes the urgency surrounding the disease that could, according to Shenk, affect as many as 15 million Americans by 2050.

The book traces the history of Alzheimer’s from the first diagnosis in 1901 and speaks about the various scientific discoveries that may lead to an eventual cure.

This book tells the stories of many Alzheimer’s patients, their families and caregivers and includes mention of famous figures like Ralph Waldo Emerson and Ronald Regan, both afflicted with Alzheimer’s.
Strauss, Claudia J. Talking to Alzheimer’’s: Simple Ways to Connect When You Visit with a Family Member or Friend New Harbinger Publication, Inc., 2001.

This book, highly recommended by numerous experts in Alzheimer’s, including Dr. Peter Rabins, Professor of Psychiatry at The Johns Hopkins University School of Medicine, addresses common issues that one encounters in dealing with people who have Alzheimer’s. Claudia Strauss provides practical suggestions that include such things as dealing with repetition in conversations, saying no to unrealistic demands. She also includes some guidelines for family members as they cope with their own feelings.

Shriver, Maria. What’s Happening to Grandpa? Little-Brown Books for Young Readers, 2004.

This bestselling author of two other children’s books that deal with sensitive issues, What’s Heaven? and What’s Wrong with Timmy? (about friendship with children who have disabilities), has once again produced a book to help children understand and deal with a grandparent who has developed Alzheimer’s. The book is suitable for children ages 4 to 8.

The video Grandpa, Do you Know Who I Am? (with Maria Shriver, 30 minutes) http://www.hbo.com/alzheimers/grandpa-do-you-know-who-i-am.html is based on this book.

Fox, Mem (author) and Vivas, Julie (illustrator). Wilfrid Gordon McDonald Partridge. (Public Television Storytime Books). Kane / Miller Book Publishers, San Diego, CA, November 1, 1985.

Mem Fox and Julie Vivas have produced a wonderful story of a small boy, Wilfrid Gordon McDonald Partridge, who lived next to a retirement home. Wilfrid’s favorite friend there is the 96-year old Miss Nancy Alison Delacourt Cooper. Everyone there says that she has lost her memory. Wilfrid gathers some of his own favorite memories in the form of seashells he collected long ago, a funny puppet, a warm fresh egg, and gives these to Miss Nancy. His wonderful way of interacting with her helps her gather and share some of her own memories. The book is suitable for children ages 4 to 8.

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